We found that the groups’ characteristics were largely similar. Over 50% were aged between 65 and 84 years old, 70% were women and 75% were white. Our first step to diversify the groups was to gain funding from the NIHR ARC South London to run a community outreach event.
The event was organised by researchers and public involvement members from south London. We planned a drop in, café-style event with light refreshments and promotional materials. Palliative and end of life care researchers were available to discuss their work with attendees and listen to how we might better involve and engage the local community.
We held the event on 9 March 2022 at the Inspire community centre in Walworth close to East Street market, where there would be large footfall. We advertised extensively at local GP surgeries, pharmacies and libraries, and contacted 22 local organisations and patient participation groups.
The event enabled nine attendees to join our PPI group and we learned invaluable lessons to involve and engage with the local community better in the future, including working with pre-existing groups and community leaders.
Funding for the event came from the NIHR ARC South London Involvement Fund 2021-22.