Researchers from the Cicely Saunders Institute (CSI) lead ARC South London’s palliative and end of life care research. Their public involvement activities were underpinned by the Institute’s first Public Involvement Strategy for the period of 2017 to 2020. Now the strategy is due to be renewed they took this opportunity to co-produce a new strategy.
On Wednesday 18 November 2020, 38 of the Institute’s researchers and public members came together for a virtual workshop to inform the Public Involvement Strategy for the period of 2021 to 2024. Reflecting on their co-produced ambition and principles and draft goals proposed by the Public Involvement strategy development group, attendees discussed how these could be collectively delivered through specific actions. These included creative outreach to seldom heard communities, developing a ‘buddy’ system, co-producing training opportunities (including public members teaching researchers), and sharing resources to support wider public involvement in palliative care and rehabilitation.