In recent years there have been significant advances in acute clinical care for people with stroke, meaning that more people now survive stroke. However, long-term care and support for stroke survivors and their carers has not kept up with these improvements in acute care.
Evidence from across Europe shows that stroke survivors continue to have multiple needs some years after their stroke, including social, emotional, financial and work needs, as well as needs for information about their stroke, prognosis and medical support. But many stroke survivors report feeling abandoned by health services once they have been discharged from hospital. Family members and informal caregivers lack support and information, and often experience long-term negative impacts on their emotional wellbeing.
Vascular researchers at ARC South London led by Professor Charles Wolfe, professor of public health at King's College London, have carried out a scoping review to identify current knowledge and understanding of the longer-term, unmet needs of stroke survivors and carers. A public version of the report was launched by the Stroke Alliance for Europe at their European Life after Stroke Forum in Barcelona in March.
Professor Charles Wolfe have the first plenary talk, presenting key findings from the research and discussing next steps for life-after-stroke research.